Washington ExaminerLean R·
We saved our daughter overseas. Congress can help the next family do it here
When my husband Dave and I learned that two of our three daughters had a fatal genetic disease, we entered the kind of nightmare for which no parent can fully prepare. Both girls — Keira and Livvy — were diagnosed with metachromatic leukodystrophy, or MLD, a rare degenerative disorder that destroys the nervous system and […]
Read at Washington Examiner →
